Management of non-syndromic craniosynostoses in France in 2015: a national survey

Publication date: Available online 30 January 2019

Source: Journal of Cranio-Maxillofacial Surgery

Author(s): Raphaëlle Prevost, Pierre Keribin, Claire Batut, Benjamin Guichard, Béatrice Ambroise, Alin Bohra, Hervé Benateau, Alexis Veyssiere

Summary

Purpose

Craniosynostoses are managed by surgical and anaesthetic teams in specialist centres. Despite the availability of international guidelines, the perioperative management of craniosynostoses remains highly variable between centres. The aim of our study was to describe the different protocols for the management of non-syndromic craniosynostoses in France in 2015.

Materials and Methods

This descriptive study consisted of a survey about the protocols of pre-operative, per-operative and post-operative management of craniosynostoses. The survey was sent to the departments in French university hospitals that perform this surgery.

Results

Nineteen departments out of twenty replied to the survey. Sixteen departments organised multi-disciplinary meetings. The most frequent preoperative imaging requested was a Computed Tomography. More than half of the centres organised a follow-up until early adulthood.

Conclusion

This study showed a great variability in the management of craniosynostoses. A recommendation from the study is to establish a scientific committee of practitioners in order to establish a standardised protocol. In addition, this study showed the need to create a specific section in the French rare diseases database (CeMaRa) for craniosynostoses.

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